Baby unable to breathe unaided after being born with adult's tongue

Baby unable to breathe unaided after being born with adult's tongue
Published: 2016 October 14 18:08:56 (10392 Views)
A baby born with an adult-sized tongue couldn't eat or breathe unaided after being born with an adult tongue.

Paisley Morrison-Johnson, from Aberdeen in South Dakota, was born with Beckwith Wiedemann Syndrome (BWS), and so for the first week of her life, she needed breathing apparatus just to stay alive and without it, she could have choked to death.

The disorder, which affects one in every 11,000 births worldwide, meant that the baby's tongue had grown to more than twice the size of her mouth.

Shocked doctors, who said it was one of the largest tongues they had ever seen, had to fit a gastronomy-tube to feed Paisley until she was six-months-old.

And even after surgery to slice parts of it away, her tongue continued to grow back and still hung out of her mouth.

Paisley, who is now 16-months-old had her second tongue reduction and has since smiled for the first time – after having a total of more than six inches of muscle removed.



Mum Madison Kienow, 21, said: 'Her tongue filled up her whole mouth, it was very thick and protruding out of her mouth. It looked she had an adult's size tongue inside the mouth of a baby.

'Her tongue was constantly sticking out, she was always chewing on her tongue because it took up so much room in her mouth.

'She's like a completely new baby – her facial features look different, she smiles a lot and she has even getting close to saying her first words.

'She couldn't even make the sounds to say words like 'mama' and 'dada' before because of the size of her tongue so this feels like a massive achievement.'

Doctors hope that Paisley won't need further tongue reduction surgery and are now monitoring for other risks associated to Beckwith Wiedemann Syndrome.

Children with the condition have a 7% to 25% of developing cancerous tumours and so Paisley will have ultrasounds and bloodwork every three months until she's eight-years-old when the risk significantly drops.



Source - Metro

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